Ethics, law and professionalism · Moderate
This case is fictional and exists for study. It describes no real patient.
78 years · male
A 78-year-old male with a history of vascular dementia is brought to the emergency department by his daughter with a 24-hour history of severe abdominal pain, abdominal distension, and absolute constipation. On examination, his abdomen is markedly distended and tympanic, with localized tenderness in the left lower quadrant. An abdominal X-ray reveals a grossly dilated loop of large bowel with a classic coffee-bean appearance, consistent with a sigmoid volvulus. The surgical team plans urgent endoscopic decompression. However, the patient repeatedly refuses treatment, insisting that he must leave immediately for his job as a train driver, a position he retired from 15 years ago.
Vital signs
- HR
- 102 bpm
- BP
- 128/82 mmHg
- RR
- 20/min
- Temp
- 37.4 °C
- SpO₂
- 96%
Examination findings
- Markedly distended abdomen
- Tympanic to percussion in the left lower quadrant
- Localized left lower quadrant tenderness without localized peritonitis
Investigations
| Haemoglobin | 13.5 g/dL | reference: 13.0-17.0 |
| White Blood Cell Count | 11.2 10^9/L | reference: 4.0-11.0 |
| Sodium | 138 mmol/L | reference: 135-145 |
| Potassium | 4.1 mmol/L | reference: 3.5-5.0 |
| Creatinine | 95 µmol/L | reference: 60-110 |
Question 1 of 3
Which of the following is the single most appropriate initial step regarding the patient's refusal of treatment?
Under the Mental Capacity Act 2005 (UK), every adult is presumed to have capacity unless proven otherwise. When a patient refuses necessary medical treatment and there is reason to doubt their decision-making ability (e.g., severe acute illness, dementia, delusion about working), a decision-specific and time-specific capacity assessment must be conducted before proceeding. Option A is incorrect because emergency common law/doctrine of necessity applies when capacity cannot be assessed or in immediate life-threats where delay causes harm, but a quick formal capacity assessment should be conducted first here. Option B is incorrect because in UK law, family members/next of kin do not have automatic legal authority to sign consent forms for adult patients unless they hold a valid Lasting Power of Attorney (LPA) for Health and Welfare. Option C is incorrect because accepting refusal without assessing capacity in a confused patient risks severe harm.
Teaching point: Before overriding or accepting a treatment refusal in a patient with cognitive impairment, clinicians must perform a decision-specific capacity assessment.
Question 2 of 3
A formal assessment confirms the patient lacks capacity to make a decision about the procedure. He has no Lasting Power of Attorney or advance decision. Which of the following is the single most appropriate next management step?
If an adult patient lacks capacity to make a specific medical decision and no Lasting Power of Attorney (LPA) or valid Advance Decision to Refuse Treatment (ADRT) exists, healthcare professionals must act in the patient's best interests under the Mental Capacity Act 2005. Consulting family members (like his daughter) helps determine the patient's past wishes, beliefs, and values to guide the best interests decision. Option A is incorrect because urgent treatment in the best interests of a patient who lacks capacity does not require Court of Protection approval — s.5 of the Mental Capacity Act 2005 provides the legal authority. An application is needed only where there is unresolved disagreement about best interests, genuine doubt, or a finely balanced decision, and for the narrow group of decisions that should always be brought before the court (non-therapeutic sterilisation, or organ or bone marrow donation by a person who lacks capacity). Since An NHS Trust v Y [2018] UKSC 46, even withdrawal of clinically assisted nutrition and hydration from a patient in a prolonged disorder of consciousness does not require court approval where the clinical team and those close to the patient agree that continuing is not in the patient's best interests. Option B is incorrect as withholding life-saving treatment due to lack of consent in an incapacitated patient is unethical and illegal. Option C is incorrect because sedating a patient to obtain 'consent' is invalid; consent cannot be legally obtained from an incapacitated or sedated individual.
Teaching point: When a patient lacks capacity and has no LPA or ADRT, clinicians must provide necessary treatment in the patient's best interests, consulting relatives to ascertain past preferences.
Question 3 of 3
Which of the following fundamental principles of the Mental Capacity Act 2005 must be strictly adhered to during any capacity assessment?
The five core principles of the Mental Capacity Act 2005 begin with the statutory presumption of capacity: a person must be assumed to have capacity unless established otherwise. Option C is incorrect because Principle 3 explicitly states that a person is not to be treated as unable to make a decision merely because they make an unwise decision. Option B is incorrect because capacity is decision-specific and time-specific, not global. Option D is incorrect because capacity cannot be judged based on age, appearance, condition, or an aspect of behavior alone.
Teaching point: Under the Mental Capacity Act 2005, capacity is presumed, decision-specific, and an unwise decision does not automatically equate to a lack of capacity.
Key learning points
- Capacity is decision-specific and time-specific; every adult is presumed to have capacity unless proven otherwise.
- Under UK law, next of kin do not have automatic legal authority to give or withhold consent for adult patients unless appointed as a legal Health and Welfare Attorney.
- If a patient lacks capacity, medical decisions must be made in their best interests under the Mental Capacity Act 2005, incorporating views from family regarding the patient's values and prior wishes.
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